Best Sound Ever.

Where did this day go? All of the sudden we are ready to go to bed. Well, Christian is already in bed. Figures...the little boy had a restless night last night. And when Christian's not happy...ain't nobody happy. He woke up in the middle of the night and threw up and then had a higher than normal heart rate. I think his tummy just hurt because he calmed down with a dose of Tylenol. But I hardly got any sleep and he hardly got any sleep so today, we were both zombies.


Christian had over an hour straight of physical therapy. He was so relaxed. They had him laying on his tummy with his arms stretched over his head. And tomorrow....the day has come! Christian is going swimming!!! I will be attending this event with my camera in tow. I hope it awakens some of those little senses. We'll see how it goes.


Christian also had his PMV on for 8 hours today. He did really well with it except that he threw up while doing hyperbarics. Two weeks ago I would have freaked out about this but now it's a daily routine occurrence. And the people at HBOT were pretty cool about it, too. The whole throw up incidence was unrelated to his PMV, though. After he got out of the chamber, he was all alert and looking around. And I heard it...his voice! Not a squeal, his voice. It was a low sigh but it was his voice and it was the best sound ever.


He is resting from the PMV right now. It's hard work for him! But the RT's say he's doing great with it! And they were even surprised he went 8 hours with it on only his 2nd day because some babies can't even tolerate it for 2 minutes. Well, I had to explain that Christian is just an overachiever and they better get used to it because he's a superstar. No, I didn't say that, but I often feel like saying it.

I do have to say that taking Christian to HBOT is starting to feel like taking Christian to family. The manager is...intense, but she knows her stuff. Listening to her talk about hyperbarics, her charity, and other public functions she's been apart of is fascinating.

I also keep getting questions about Christian's brain and whether we've received an MRI. We did while we were in the PICU and it showed global damage, grey matter and the like. But his EEG showed close to brain death the night he was brought into the PICU and 12 hours later he had activity. Things change. But I'm not really interested in what an MRI has to say. It will say one of three things...1) Brain has improved. 2) Brain is still damaged. 3) Somewhere in between choices 1 and 2, mostly likely still closer to choice 2.

It's weird but I'd rather not know. I can see what Christian is doing, and what he's capable of with my own eyes. We don't need another MRI to tell us his brain is injured. We know this. And I'd rather see what Christian is capable of rather than try to guess at what the future holds from an MRI.

Another specialist will be visiting Christian soon and that will be someone to test his vision. I believe Christian can see and can focus but his little brain is trying to make sense out of what he sees. So I think he has the ability to see but has trouble making sense out of what he's seeing, which may cause his vision to be impaired for a while. It's just a guess so we'll see if I'm right.

And the feeding issue...don't even get me started.

So everyone remember to kiss your babies tonight. If they wake up in the middle of the night crying out for you, please say a prayer thanking God for their little cry, and another prayer for Christian, too.