This Week!

This week will be the end of our hospitalization journey. I'm so proud that we are going home. I'm proud that we've made it to the other side and Christian is going home with his eyes open, breathing, and his little heart beating which was not how he left home. To put it quite bluntly, he left home clinically dead and is coming back alive. Just think about that for a second. It's really miraculous, especially since many children found in the same situation as Christian reach a far more devastating fate.

This week will mean many things for our family. Our lives will be different. We are different. We are the same people underneath and we have the same love, if not more love, than we had before for one another. But we are changed forever. Whereas we used to fret over really insignificant things, our eyes are open now to what's really important. And what's really important does not include the size of our house, the year of our car, boats, purses, etc. In fact, when I visited home shortly after the accident I walked into my closet, looked at all the clothes and accessories hanging lifelessly and asked out loud, "Why do I have all of this sh*t?" None of it mattered. And you really get perspective on that after you've lived in sweatpants and tshirts everyday of the week with no makeup.

This week we get to be a family again. Our family will be different, but the same. We get to laugh, joke, yell, tease, hug, snuggle, and bicker on a more permanent basis. We get to eat around the dinner table, have movie nights, and Sunday Specials (chocolate chip pancakes - Gabe's favorite).

This week is full of big changes and big moves. We have to make sure all of the medical equipment gets where it needs to go, that we have "to go" medical equipment to make the trip from Phoenix to Tucson and that we have some kind of idea about how to get PT, OT, and speech set up as soon as possible.

This week I have to speak with Early Intervention again. Get this - I talked to the lady on Friday about signing papers and I asked her again about how much PT we're going to get from the state. She was in a hurry so she said abruptly, "EI is only going to give you 4 times a month..." She has said this a couple times so I'm calling on all my EI specialists who have given me such good advice. How do I get more? Because it sounds like the EI lady has been trained to read a script and say "...four times a month, four times a month."

This week might actually happen and it all starts about 8 hours from now when I wake up. Of course, this is all tentative. It won't be final until MIA doctor who comes back tomorrow, supposedly, makes the official confirmation.

We have been waiting for this week. Wish us luck and prayers because there will be A LOT of changes.